I'm 26 years old, I have bilateral polycystic kidney disease, and I'm the mommy to a wonderful little girl. I'm starting a trial drug called Tolvaptan, in hopes of prolonging my renal life. I'm starting this blog to my daughter to inform her. To let her know everything. I lost my mom while I was pregnant with Lucy. It has been a wonderful and horrible two years without her. Horrible because she's gone, wonderful because Lucy is here. I have dealt with a brain tumor and PKD. I lost both of my parents before I was 25 and I'm still here. It's just me, my husband, and Lucy. This is our life. I hope others can see these letters. I hope people with PKD will find hope and encouragement. I hope people that don't have pkd will get a real understanding of this disease.